Today I learned (from my doctor) that migraines can ‘chain’… with breaks between as short as 2 hours or as long as many years.

Mine have come back recently and I’ve basically been in a migraine state for 7 days now.

My doc has been trying a few new meds but tonight I decided to stay with the devil I know because it’s bed time… a triptan.

Wish me luck

Time for a new #introduction post.

Hiya. I'm Dreadful Sanity aka Mel, a level 47 gamer from Germany. #Videogames keep me basically from going completely crazy and therefore alive. I'm #disabled, suffering from debilitating #migraines most days of the week. I also have #ADHD which means my brain is usually going all over the place. And last but not least, there is some #BPD mixed into the mess that I am. Beware of that.

The games that I usually alternate through are...
#Warcraft
#DragonAge
#MassEffect
#Cyberpunk2077
#TheSims4
#BaldursGate3

Though every now and then I will play something new. Or different.

I think that's all.

Is anyone else seeing Medicare not pay for prior auth stuff now?

Last year #medicare approved #Botox for #migraines after two hospital admissions where they were billed about $25,000 each.

I guess they figured preventative measures at $5000 a pop would be better than $50,000 in a summer. I had this procedure 20 years ago and after the third round of shots it lasted almost a year and it was amazing.

This time my first round was in December, my second round was in February, I was supposed to get the third set in April but they kept postponing it. I assumed it was a staffing problem. Then I looked at my EOB.

Medicare had paid them NOTHING. I am shocked & I think they are too.

I get financial aid at this hospital so regardless I don’t have to pay, but I also don’t want the Hospital system I appreciate and depend on getting ripped off for $10,000 worth of bills.

I would be freaking out right now if I had this procedure at pain management because that would mean I would be shut off from pain management if I was unable to pay this $10,000.

Maybe it’s just me, but please be warned. It doesn’t seem like having a prior authorization matters much anymore. If you qualify for Hospital financial aid please apply now before they stop giving it out.

I don’t know what to do about this but I canceled my next appointment. They keep moving it anyway I assume they want to make sure they’re going to get paid before they do it again. I don’t even think it’s helping anyway. These are menstrual related migraines not tension headaches triggering migraines.

I sent them a message and I asked them if I should be appealing this before it’s too late. I think I only get 120 days to appeal. Concord Hospital Nurology is so awful I’ll never go there again but I still don’t want them getting ripped off.

Support Group Recap: Self-Compassion Amidst Chronic Illness February 11, 2025
https://batemanhornecenter.org/wp-content/uploads/2025/02/20250211-Support-Group-Recap.pdf

@chronicillness
@spoonies
#neisvoid
#chronicillness
#chroniclife
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
#ChronicIllnessMemes
@longcovid
#LongCovid @mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #Migraine #migraines @migrainechatgroup @migrainechat @fibromyalgia
#Fibromyalgia #Fibro #FMS #FM

No sé qué pasó pq estoy posteando poco y escribiendo menos, pero la semana pasada el #blog tuvo una barbaridad de visitas.
A los seguidores y a los que distéis con él por casualidad, #GRACIAS

#blogger #bloguera #Bloguers #Mastoblog #Mastobloguers #Mastoblogger #salud #health #Lupus #LES #SEL #EncefalomielitisMialgica #MyalgicencEphalomyelitis #Sjögren #Sjögrens #Fibromialgia #fibromyalgia #migraña #migrañas #migraine #migraines #Raynaud #raynauds #RaynaudsDisease #natura
https://domandoallobo.blogspot.com

If you get #migraines and have meds that work for you, did you ever have some that didn’t and also make it feel like your blood was boiling in your veins? I gave up after 3 meds all did this. But maybe it was too early? Dunno.

Believe me or not, but a few puffs on a cannabidiol (CBD) joint appear to bring relief to my recurrent migraines faster and often better than Rizatriptan.

#migraines #headache #cannabidiol #CBD vs #Rizatriptan

What is #PeriodFlu and how can you treat it?

Do you experience nausea, dizziness or feel weighed down by headaches that resemble flu symptoms around the time of your period? You’re not alone.

https://www.irishnews.com/life/what-is-period-flu-and-how-can-you-treat-it-XMJ4POVKEVNENLEFPNGOCJEGNE/

Injectible fentanyl, dilaudid, and morphine are on shortage according to the #FDA.

It’s also a little scary that the benzos by IV are also on a shortage.

And promethazine by IV.

So, basically whatever they would give me (not the fentanyl but the rest) in the IV to stop abdominal #migraines. Awesome.

https://dps.fda.gov/drugshortages

#migraines

So the husband was incapacitated for 3 days straight.

The emergency room was useless.

Anyone have advice? Anyone been there?

Hope for migraine sufferers. A new drug may prevent symptoms, if you spot certain signs before the headache starts. Read more from BBC Science Focus: https://flip.it/sgpdwY
#Science #Health #Medicine #Human #Migraines

Find more science news at @sciencefocus.

Some recent changes:

1. Started taking Propranolol as a preventative treatment for my #migraines. Been struggling with low blood sugar and had a scare today with abnormally low heart rate. Everything seems to be okay atm. We're monitoring for now.
2. I started back on Zoloft for my #OCD and #GAD with Klonapin as needed for panic and #anxiety attacks. It'll take a bit for evening to stabilize, but I am already starting to feel a bit better. The Zoloft will help with my #IBS as well.

Do any of you get #migraines?

I've had two in the past 24 hours and I'm grumpy.

At least I get a warning. I see a blurry spot, like a broken pixel on a monitor, that grows into a buzzing cresent of an alligator. It totally disrupts my vision as it continues to expand. It's there with my eyes open or closed too.
Once it passes (about 20 to 30 minutes), the pain starts, so I take my excedrin immediately when I see it, then go lay down and cover my head.

Today, I woke up with the alligator half formed.

I tried to draw it, but didn't do it justice. Imagine it glitching.

Do you have a signal you're gonna get one?

I like this #migraines

Last night we decided to get me a TENS unit to see if that helps my #migraines — who knows! Anyway, tonight, my husband @bigzaphod went out to get the mail, glasses off due to rain, and he was astonished that it came already! Amazingly fast.

Except it was hot sauce.

Who knows, maybe that’ll also help.

After thinking about it (and dreading it) I finally decided to give "ice plunge" a try.
As someone who gets cold so easily and that dislikes the feeling (of being cold) a lot this sounded like some sort of personal hell.
It was every bit as uncomfortable as I thought it would be. But my chronic #migraines have been so out of control recently that I have been trying multiple things to help with them.

Fingers crossed

#NoMansSky #gaming

Steam Deck OLED?

Gaming rig connected to a good 37” ultra-wide gaming monitor?

Gaming rig connected to a 55” LG OLED tv?

Gotta give credit to the #SteamDeck OLED though because getting it recently has been where I started playing No Man’s Sky again and it’s where I’ve been playing it about 80% of the time.

Combine that with my bad #migraines lately and all of it’s associated side effects, it has been a fantastic thing to have. So glad I finally purchased one!

I read something about #riboflavin being effective for daily #headaches / #migraines, but also read it is not understood why it works. I just don't get it. How could such a significant thing not be understood? Is this a case of the #pharmaceutical industrial complex not wanting to popularize an easy solution, or are medical university researchers not interested? It would be if medical researchers lived this way. Not a single doctor has told me about it. They all say, see a neurologist = money.